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<p>The unprecedented level of digital data available across an expanding electronic landscape poses complex challenges for IRBs as they attempt to provide ethical insight and ensure participant privacy.&nbsp;Some of these data are collected in clinical care, but the public also is generating data through health monitoring devices, GPS location systems, social media, and information collected and shared on mobile apps.</p>

OHRP Holds Workshop on ‘Pervasive’ Data

Questions both ethical and technical on a tsunami of data