Local Alzheimer’s Association chapters or the national office in Chicago are among the best informational resources on the disease, both for family caregivers and health care professionals. Contact the association at 919 N. Michigan Av., Suite 1000, Chicago, IL 60611. Telephone: (800) 272-3900. Web: www.alz.org. The association also has published a guide for developing dementia programs, called The Key Elements of Dementia Care. Call (312) 335-5796 for ordering information.
Another source of information is the Alzheimer’s Disease Education and Referral Center of the National Institute on Aging, P.O. Box 8250, Silver Spring, MD 20907. Telephone: (800) 438-4380.
Earlier this year Springer Publishing issued Hospice Care for Patients with Advanced Progressive Dementia, edited by Ladislav Volicer and Ann Hurley (320 pages; $48.95 hardcover). The book addresses program implementation as well as clinical and ethical issues. Contact Springer at 536 Broad way, New York, NY 10012. Telephone: (212) 431-4370. Fax (212) 941-7842.