Articles Tagged With: representation
-
American Heart Association Urges Improvement in Stroke Care
In a scientific statement, the group offered tactics to eliminate the racial and ethnic inequities that exist in stroke incidence, prevalence, treatment, and outcomes.
-
Personal Connections Are Crucial When Recruiting from Underrepresented Groups
Research findings that are not representative of the entire population perpetuate disadvantages to minoritized groups. Community members can advise research teams about messaging and perceptions that might undermine investigators’ ability to successfully recruit participants from diverse racial and ethnic backgrounds. A lack of trust in medical research results in many people declining to participate in clinical trials.
-
Efforts Underway to Diversify Clinical Ethics Field
Success depends on available ethics resources and overall organizational diversity. Broader changes to the ethics field resulting in more diversity would require regulatory, legal, or accreditation oversight. Absent that, it is going to be one institution at a time, or one or several ethicists at a time, trying to create the right kind of mix of diversity and representation.
-
Researchers Are Revamping Processes to Gather Community Input
Input from community members can help researchers make the study more effective by providing participants with regular updates on the results and proactively translating research consent forms into preferred languages. Investigators also could hire a staff representative of the community who can navigate cultural nuances and speak the preferred languages.
-
Few People with Limited English Proficiency Participate in Stroke Studies
Rather than making the IRB processes more difficult for researchers who wish to include underrepresented populations in their study, IRBs should work with researchers to overcome obstacles.
-
Updated Guidance Provides Sense of Urgency to Improve Clinical Trial Diversity
Organizations must invest in research infrastructure to support investigators in enrolling and retaining diverse study populations.
-
New Guidance to Promote Diverse Populations in Cardiovascular Trials
Individuals who participate in randomized clinical trials should be representative of the patients who will be treated with the drugs under investigation. Unfortunately, studies have consistently shown women and those from racial and ethnic minority groups are consistently underenrolled in cardiovascular clinical trials relative to their disease burden in the population.
-
White Adults, Women Overrepresented in U.S. Vaccine Trials
Investigators uncover reporting gaps, lack of proper representation for older adults, minority groups.
-
Establishing the Right Policies on Decision-Making for Unrepresented ICU Patients
A new policy statement recommends institutions prevent patients from becoming unrepresented in the first place by offering advance care planning. Conduct thorough capacity assessments and search for potential surrogates before assuming patients are unrepresented.