Articles Tagged With: genomics
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‘It’s a No-Man’s Land’: The Pitfalls of Genetic Data-Sharing and Informed Consent
It is unclear how well participants really understand all the potential risks of sharing their DNA. Researchers are ethically obligated to be sure that what they are asking people to consent to is just, fair, appropriate, and respectful of human rights.
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Privacy Remains Central Problem with Genomic Data-Sharing
Making the system more trustworthy requires greater transparency, clear principles of accountability, and more comprehensive laws and regulations that protect against discriminatory uses of genetic information. The results of a recent survey may reveal the work ahead.
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Ethical Obligations to Study Participants if Findings Are of Unknown Significance
The average person carries more than 500,000 rare or novel genetic variants, thousands of which might be identified during a genomics research study. The question is whether, and how, people should be told about any of these findings.