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Bioethicists recently published a case study of this horrific chapter in human research history after comprehensively reviewing all the records of the Guatemala experiments. The most egregious aspect was that some participants were intentionally infected with syphilis and other STDs.
Since Memorial Sloan Kettering Cancer Center implemented the electronic informed consent process, thousands of research participants have consented electronically, increasing at a rate of about 500 per month.
Not all IRBs and research institutions specifically address limits to how much researchers can compensate study participants. But allowing these limits to default to what is reportable to the IRS as income could be a mistake, one IRB chair says.
Nearly a quarter of a million people have joined the National Institutes of Health’s ambitious All of Us precision medicine initiative — with a large response from racial and ethnic minorities who have been historically victimized or ignored by human research.
IRB members soon will see — if they haven’t already — protocols involving medical therapies with materials that are so tiny that a human hair is 80,000 times their width.
Department of Energy researchers developed a new tool to connect cancer patients with clinical trials. The tool uses a Netflix-style of analytics to recommend studies that would be a good fit for particular patients.
Financial Disclosure: Author Melinda Young, Medical Writer Gary Evans, Editor Jill Drachenberg, Editor Jesse Saffron, Editorial Group Manager Leslie Coplin, Physician Editor Lindsay McNair, MD, MPH, MSBioethics, and Nurse Planner Kay Ball, PhD, RN, CNOR, CMLSO, FAAN, report no consultant, stockholder, speaker’s bureau, research, or other financial relationships with companies having ties to this field of study.
