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Those interested in finding out more about ALS can find a treasure trove of information on the Internet, beginning with the Web site operated by the ALS Association:
• www.alsa.org — This site for the national organization gives the reader a detailed description of the disease, statistics, lists of services and contacts, and access to publications, manuals, and references. It also offers links to local chapters, which can provide more regional contacts.
• www.bcm.tmc.edu/neurol/struct/als/als7f. html — Run by the Baylor College of Medicine, this offers a handy four-page explanation of symptoms, treatments, adaptive devices, nutrition, and exercise advice for patients with ALS.
• www.mdausa.org/publications/alsmats.html — The Muscular Dystrophy Association, which bills itself as the largest nongovernmental sponsor of ALS research and service, maintains a large library of materials on ALS, many of which can be viewed for free on this Web site. Included is When a Loved One has ALS: A Caregiver’s Guide.
• firstname.lastname@example.org — writing to this e-mail address asking to subscribe will get you on the mailing list of the ALS Digest Online.